ClinicalTrials.gov ID: NCT07130071 /IRAS project ID:361770/25/REC: EM/0231/Protocol number: OPRIUK-2102
HRA REC
EM/0231
IRAS reference
361770
Trial registration (clinicaltrials.gov ID)
NCT07130071
NIHR RDN Portfolio Adopted
CAPTURED is a clinical trial that brings algorithm technology and quality improvement support into clinical practice for faster diagnosis of rare and difficult to diagnose disease
On average, patients see five doctors, receive three misdiagnoses and must wait four years before correct diagnosis (Rare Disease UK, 2016).
Algorithms can identify patients at risk from specific rare diseases enables patients to access correct care and treatments
Introducing CAPTURED
CAPTURED is a novel clinical trial to evaluate the use of algorithm technology and quality improvement support for identifying, testing and referring patients at high probability of specific rare or difficult to diagnose disease.
CAPTURED will be run over 5 years.
Get involve in CAPTURED
If you are interested in CAPTURED and want to find out more, please contact the team at:
Captured@opri.org.uk
Frequently Asked Questions
What data is collected, and how is it anonymised?
What is the role of Harvey Walsh and Akrivia Health?
What aspects of the OPC Service and OPCRD are specific to CAPTURED, and what is provided through wider OPC Services and OPCRD?
Why is data collected from the wider practice population, and how is data minimisation achieved?